From: Laurie Wood [mailto:ljwood@shaw.ca]
Sent: Mon 2/5/2007 3:27 PM
To: Rollason,Kevin
Subject: Re: Your story in the Winnipeg Sun today
Dear Mr. Rollason:
Today is our son's birthday. He has Down Syndrome and he's 17 years old.
We have a daughter with Down Syndrome who is 14 and a half years old as
well. We wouldn't trade them in for anything in the world. You are
right, this genetic testing is a very slippery slope. The Canadian
Charter of Rights and Freedoms is supposed to protect everyone in our
country - including the disabled. It is a shame on our country that we
can sit by and allow this genetic testing creep into our medical system.
Most people will be terrified with the news that they may be/are
carrying a Down Syndrome baby. Most doctors paint a bleak picture out of
their own ignorance.
Our own family doctor in Ontario had never had Down Syndrome patients
before - he had to buy some books when our son was born so he could
learn about these babies in order to care for our son, but our doctor is
far from the norm. Thank you for pointing out in your article that
overlap of intelligence between high-functioning Down's children, and
the "lower intelligence" of so-called normal children. Our son attends
high school, can read and write, and works at an afternoon Co-op at our
city's Art History Museum, where he's learning to operate the cash, show
people around the exhibits, take care of the exhibits, and take care of
the gift shop. Our daughter attends the same high school, takes the same
academics, is in the cosmetology course, and works in the school
cafeteria. They've enjoyed Special Olympics for three years and have the
gold medals to prove it. They can beat their peers in bowling, love
playing Playstation (my son can beat my husband sometimes), computer
games, and going to dances.
Did they deserve to be aborted? Certainly not. Will they live productive
lives in the community, most likely employed in some lower-end job such
as stock clerk, or grocery check-out person? A veterinary assistant? A
deli clerk filling salad containers? More than likely!
Should people think twice about their OWN rights and freedoms under the
Charter being eroded by geneticists infringing on them? I believe so. If
we let them test us for "Down Syndrome", what will become essential
next? Will testing become mandatory at the beginning of every woman's
pregnancy? What will your information be used for? Who will have access
to it - for ongoing genetic research? It's a slippery slope not only for
the *disabled* but for the able-bodied who may someday soon find
themselves losing their right to privacy and having to have tests that
aren't necessary and may do more harm than good.
I have a girlfriend who was tested "routinely" and told her baby girl
had Downs Syndrome. Because they were Catholic, they didn't abort. Their
baby girl was perfectly normal and healthy. Their pregnancy was
agonizing, because some doctors taking part in a genetic project had to
have their jollies.
People must stand up and take issue with the fact that a) the so-called
"disabled" are part of our diverse society and therefore are as
protected under the Charter as everyone else, and b) they must protect
their own rights and freedoms under the Charter, and not be bullied into
"routine testing" that is a euphemism for "research" for geneticists
that have a hobby horse for another purpose.
And as you so eloquently put it, sir, we are all just a car crash, a
blood clot, or an illness away from becoming disabled ourselves.
Something for all of us to ponder - there but for the grace of God go I.
Sincerely,
Laurie Wood